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Clinical Trials

As new drugs, therapies, and treatments are developed and tested, those which hold promise are further tested in controlled, closely monitored environments using patient volunteers. These human research studies are commonly called clinical trials. This area contains listings of clinical trials we believe will be of interest to the TelAbility Community.

For comprehensive informationf or patients considering participating in a clinical trial please visit "What Is A Clinical Trial?" available from the National Institutes of Allergy and Infectious Disease at the National Institutes of Health.

Should you locate a particular clinical trial that interests you, please use the specific contact information in the listing to obtain more detailed information.

Title: Project ACT NOW
Start Date: 08/01/2006 12:00 AM
End Date: 08/01/2011 12:00 AM
Description: This is a research study focused on understanding the effects of aging and exercise intervention on adults with Cerebral Palsy (CP).
You may be eligible to participate in this study, if you:
1. Have a Diagnosis of Cerebral Palsy
2. Are 21 Years of Age or Older
3. Can Communicate
Compensation provided for participants
Contact: Deborah Thorpe, PT, PhD
Phone: 919-966-5643
Email: dthorpe@med.unc.edu

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Title: DUMC Cord Blood Study
Start Date: 06/01/2010 12:00 AM
End Date: 07/01/2012 12:00 AM
Description: The purpose of this study is to determine the efficacy of a single intravenous infusion of autologous umbilical cord blood (UCB) for the treatment of pediatric patients with spastic cerebral palsy
This study is currently recruiting participants.
Contact: Jessica Sun, MD
Phone: 919-668-1100
Email: jessica.sun@duke.edu

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Title: Sensory Experiences Study Examines Developmental Delays
End Date: 06/30/2013 12:00 AM
Description: The Sensory Experiences Project Needs You!

We are currently recruiting children ages 2-12 with autism and/or developmental delays, Down syndrome and other genetic syndromes resulting in developmental delays to learn more about children’s sensory experiences, the impact of these experiences on children and their families, and changes in these experiences over time.

Parents will complete a packet of questionnaires and some interviews about their child. Their child receives developmental and play-based sensory assessments. In addition, some families that qualify may be asked to participate in other components of the project, including an analysis of videos from the infancy period, an EEG study that analyzes brain waves, and/or an eye-tracking task to learn more about the nature of sensory responses to novel auditory or visual stimuli. The time commitment varies (5 to 9 hours) depending upon which components are completed.

Benefits:

• All families will receive a summary of the results of their child’s developmental and sensory assessments.
• Families of children who complete the EEG will also receive a certificate with a picture of their child’s brain waves.
• All families will receive financial incentives (between $25 and $220 depending upon which components of the project are completed). Mileage reimbursement is available for families who are traveling more than 20 miles each way.

For more information about The Sensory Experiences Project (SEP), visit our website at http://www.med.unc.edu/sep. If you are interested in participating in the project, please call our toll free line at 1.800.514.9981 or e-mail us at sep@unc.edu. We are happy to tell you more about our project and answer any questions.

SEP is funded by the National Institute of Child Health & Human Development (Grant# HD42168).The Principal Investigator is Dr. Grace Baranek. This study has been reviewed and approved by the UNC Biomedical Institutional Review Board (IRB # 07-1926).
Contact: Jeanne Lovmo
Phone: 1-800-514-9981
Email: sep@unc.edu

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Title: ASPIRE (Adolescent, School-Age and Preschool Psychiatric Intervention Research and Evaluation Program
Start Date: 01/20/2006 12:00 AM
End Date: 12/20/2010 12:00 AM
Description: The ASPIRE Research Team is a group of dedicated clinicians who specialize in working with children and adolscents with neuro-developmental disorders. Presently, ASPIRE is recruiting children and adolescents with autism spectrum disorders, between the ages of 2.5 and 17 years who have symptoms in the following areas: social relatedness; communication; repetitive behaviors; unusual interests. All participants receive complete medical and psychiatric evaluations. Some studies involve free study related medications and monetary compensation. To find out more call 919.843.1800 or 1.800.708.0048.
Contact: Michelle Bowden
Phone: 1.800.708.0048

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Title: The Research Registry
Description: The Research Registry is a list of individuals and/or families who are willing to be notified when research studies need participants. Individuals (adults or children) who have pervasive developmental disorders such as autism, high functioning autism, or Asperger's are eligible to be in the Registry. Families will receive a summary for each study in which they participate when the study is completed Some studies may offer a stipend for completion and reimbursement for expenses if travel is necessary. Enrolling is easy. Just contact the Research Registry office at 1.866.744.7879.
Contact: Renee Clark
Phone: 1.866.744.7879
Email: renee_clark@unc.edu

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To see a listing of all trials, click here.

 



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