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This area provides selected resources that we feel will be of
interest and/or service to the TelAbility community. Although our own
expert staff did not develop these resources, TelAbility has reviewed
them prior to their being added to this area. You can search this area
to find materials on topics of interest to you and, as always, we welcome
your assistance in suggesting other resources that you've found to be
helpful or that you believe should be added. Send us
 .
| AAP Clinical Report on Assistive Technology |
| Source: | American Academy of Pediatrics |
| Description: | Prescribing Assistive Technology Systems: Focus on Children With Impaired Communication. |
| Format: | Adobe Acrobat |
| Size: | 138.614 kb |
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| Assessing the Health-Related Needs of Youth with Disabilities |
| Source: | NC Office on Disability and Health |
| Description: | This pamphlet summarizes findings from focus groups of people with disabilities and chronic health conditions making the transition to adulthood. (Spring 2000) |
| Format: | Adobe Acrobat |
| Size: | 194.072 kb |
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| CAP/C Case Management |
| Source: | Woody's Mom, Inc. |
| Description: | The .pdf file below may be helpful in understanding some of the new benefits and services now offered to CAP/C recipients.
The generic version can be found on DMA's website at:http://www.dhhs.state.nc.us/dma
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| URL: | http://www.woodysmom.org |
| Format: | Adobe Acrobat |
| Size: | 698.813 kb |
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| CSHS Durable Medical Equipment Funding Guidelines 2005 |
| Source: | NC Children's Special Health Services |
| Description: | An 18-page document listing policies, procedures, and resources to obtain funding to purchase DME (durable medical equipment) for children with special needs in North Carolina |
| Format: | Microsoft Word |
| Size: | 131.584 kb |
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| Caring for Your Child's Gastrostomy |
| Source: | UNC Hospitals |
| Description: | A video from the Carolina Center for Special Surgery for Children. This guide describes the ins and outs of caring for your child's g-tube and offers trouble shooting advice to improve gastrostomy feeding. |
| URL: | http://www.telability.org/videos/Gastrostomy.wmv |
| Caring for Your Child's Gastrostomy: Spanish Version |
| Source: | UNC Hospitals |
| Description: | Un vídeo del centro de Carolina para la cirugía especial para los niños. Esta guía describe cómo cuidar para su g-tubo de child's y ofrece consejo de la investigación de averías para mejorar la alimentación del gastrostomy. |
| URL: | http://www.telability.org/videos/GastrostomyEspanol.wmv |
| Decision Tree for Funding Positioning and Mobility Devices and Orthotics |
| Source: | Karen Haas, LPT |
| Description: | A step-by-step outline to help you determine which funding source to use for durable medical equipment. |
| Format: | Microsoft Word |
| Size: | 25.6 kb |
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| Disaster Preparedness for People With Disabilities |
| Source: | American Red Cross |
| Description: | Is it hurricaine season again? This 48-page booklet is designed for use by anyone who has a disability or who works with, lives with, or assists a person with a disability. Has information on possible disaster effects, assessing
personal needs and abilities, suggestions about forming a personal support network, and fill-in-the-blank checklists. A good resource for young adults moving out of the house as they make the transition to adulthood. |
| Format: | Adobe Acrobat |
| Size: | 1411.128 kb |
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| Early Infant Assessment Redefined |
| Source: | Pathways Awareness Foundation |
| Description: | Established in 1988, the Pathways Awareness Foundation is a not-for-profit organization dedicated to education for and about children with movement difficulties and physical challenges. The activities of the Foundation are based upon the expertise of the Pathways Medical Round Table, which is comprised of leading physicians, clinicians and lay advisors who are sensitive to the medical and emotional needs of the physically challenged, their families and/or caregivers.
If you would like more information about the Pathways Awareness Foundation or services available in your area, please call toll free 1-800-955-CHILD or write to Pathways Awareness Foundation, 150 N. Michigan Ave., Suite 2100, Chicago, Illinois 60601
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| URL: | http://www.telability.org/videos/eiar.ram |
| Emergency Medical Information Form |
| Source: | American Academy of Pediatrics and American College of Emergency Physicians |
| Description: | A standardized 2 page form that, when completed by parents and/or their physician, lists the most important and helpful information needed by emergency medical personnel caring for a child with special needs. Copies of this form should be available at the child's home, daycare, and/or school and should be updated regularly. |
| URL: | http://www.aap.org/advocacy/blankform.pdf |
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| Esta Bien Mi Bebe? |
| Source: | Pathways Foundation |
| Description: | Spanish Version : Establecida en el ano 1988, la Fundacion de Entendimiento "El Sendero" es una organizacion no gubernamental dedicada a la educacion de y sobre los
ni?os con dificultades del movimiento y retos fisicos. Las actividades de la fundacion estan basados en el juicio de la Mesa Redonda Medica "El Sendero", la cual esta compuesta de medicos, clinicos y consejeros publicos sobresalientes quienes estan sensibles a las necesidades medicas y emocionales de las personas con retos fisicos, sus familias y los que les cuidan.
Su usted desea mas informacion acerca de la Fundacion de Entendimiento "El Sendero" o sobre los servicios disponibles en su area, por favor llame, sin tarifa, al 1-800-955-CHILD o escriba a Pathways Awareness Foundation, 150 N. Michigan Ave., Suite 2100, Chicago, Illinois 60601.
?Mi Bebe Esta Bien? esta posible en parte a traves de la fundacion de Entendimiento "El Sendero" y una subvencion del Ronald McDonald Children's Charities. |
| URL: | http://www.telability.org/videos/EstaBienMiBebe.ram |
| Focus Group Report |
| Source: | The TelAbility Project |
| Description: | This may be found elsewhere on the site as well. |
| Format: | Adobe Acrobat |
| Size: | 67.463 kb |
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| Growing Up with Spina Bifida |
| Source: | NC Office on Disability and Health |
| Description: | This report summarizes the major findings of the recent NC spina bifida research study, "Quality of Life and Secondary Conditions in Individuals with Spina Bifida". Helpful for parents and teenagers with spina bifida who are making the transition to adulthhood. |
| URL: | http://www.fpg.unc.edu/~ncodh |
| Format: | Adobe Acrobat |
| Size: | 1809.17 kb |
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| Guidelines for Prior Approval of Pediatric Mobility Systems by the North Carolina Children's Special Health Services Program |
| Source: | North Carolina Department of Health and Human Services, Division of Public Health, Women's and Children's Health Section |
| Description: | North Carolina Department of Health and Human Services,
Division of Public Health, Women's and Children's Health Section -
Guidelines for Prior Approval of Pediatric Mobility Systems by the North
Carolina Children's Special Health Services Program |
| Format: | Adobe Acrobat |
| Size: | 180.075 kb |
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| How to Access CAP-MR/DD |
| Source: | North Carolina Council on Developmental Disabilities |
| Description: | A 48-page guide to North Carolina's Community Alternatives Program (CAP) for persons with mental retardation and developmental disabilities. Uses everyday terms to provide a description of the program and step by step instructions about how to apply for funds. |
| URL: | http://www.nc-ddc.org/ |
| Format: | Adobe Acrobat |
| Size: | 698.813 kb |
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| Is My Baby OK? |
| Source: | Pathways Awareness Foundation |
| Description: | Established in 1988, the Pathways Awareness Foundation is a not-for-profit organization dedicated to education for and about children with movement difficulties and physical challenges. The activities of the Foundation are based upon the expertise of the Pathways Medical Round Table, which is comprised of leading physicians, clinicians and lay advisors who are sensitive to the medical and emotional needs of the physically challenged, their families and/or caregivers.
If you would like more information about the Pathways Awareness Foundation or services available in your area, please call toll free 1-800-955-CHILD or write to Pathways Awareness Foundation, 150 N. Michigan Ave., Suite 2100, Chicago, Illinois 60601.
Is My Baby OK? was made possible in part by the Pathways Awareness Foundation and a grant from the Ronald McDonald Children's Charities
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| URL: | http://www.telability.org/videos/imbok.ram |
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| Latex Precaution List |
| Source: | The Spina Bifida Association of America |
| Description: | To help you learn more about how to prevent latex (natural rubber) allergies, this list describes latex containing products frequently found in the community and in the hospital and provides latex-free alternatives. |
| URL: | http://www.sbaa.org/ |
| Format: | Adobe Acrobat |
| Size: | 430.484 kb |
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| NC Health Choice physician certification form |
| Source: | North Carolina Health Choice for Children |
| Description: | Children in the NC Health Choice Program meeting the legislative definition for special needs services must now be identified with this Physician Certification Form, signed by the diagnosing physician, if they need services above the core service package covered by the State Employee’s Health Plan. If you have more questions about this program , click on the link below or call 1-800-737-3028 |
| URL: | http://www.dhhs.state.nc.us/dma/cpcont.htm |
| Format: | Adobe Acrobat |
| Size: | 14.285 kb |
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| North Carolina Children's Special Health Services Program - Covered DME list |
| Source: | North Carolina Department of Health and Human Services, Division of Public Health, Women's and Children's Health Section |
| Description: | North Carolina Department of Health and Human Services, Division of Public
Health, Women's and Children's Health Section - Covered DME list |
| Format: | Adobe Acrobat |
| Size: | 90.256 kb |
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| North Carolina Recreation Resource Guide |
| Source: | NC Office on Disability and Health |
| Description: | This guide includes a listing of inclusive recreation facilities and opportunities in North Carolina for young adults with disabilities making the transition to adulthood. Resources include community, state, and regional recreation resources as well as national adapted sports and recreation organizations. |
| URL: | http://www.fpg.unc.edu/~ncodh/index.htm |
| Format: | Adobe Acrobat |
| Size: | 311.492 kb |
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| Obsessive-Compulsive Disorder: A Real Illness |
| Source: | National Institute of Mental Health |
| Description: | An easy to read handout on OCD from the National Institute of MentalHealth. |
| URL: | http://www.nimh.nih.gov/publicat/NIMHocd.pdf |
| Partners in Health Care |
| Source: | NC Office on Disability and Health |
| Description: | A one page handout providing tips on communicating with your health care provider. Good information for teenagers with disabilities making the transition to adult services. |
| URL: | http://www.fpg.unc.edu/~ncodh/ |
| Format: | Microsoft Word |
| Size: | 24.576 kb |
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| Pediatric Gastrostomy Tubes and Appliances |
| Source: | Lynne Farber, RN, PNP - UNC Pediatric Surgery Department |
| Description: | An 18-page online manual with diagrams and pictures that teaches parents and providers all about pediatric g-tubes and g-buttons. Includes sections on surgical techniques, feeding instructions, oral care, and solutions to commonly encountered problems. |
| URL: | http://viper.med.unc.edu/surgery/pediatrics/PDFs/gastrostomy.pdf |
| Public Funding Options for Positioning and Mobility Devices |
| Source: | Karen Haas, MPH, PT |
| Description: | A quick reference guide for most information contained in the formal CSHS Guidelines packet on securing funds for durable medical equipment (DME) from public agencies. |
| Format: | Microsoft Word |
| Size: | 69.632 kb |
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| Sensory Processing: Strategies to Increase Engagement |
| Source: | Linn Wakeford, M.S., OTR/L |
| Description: | Included in this handout are some basic strategies to support engagement and participation for children (or adults!) with different patterns of sensory processing problems. General strategies and some specific examples are provided, along with the goal of intervention for each pattern, to help you think about how to provide support for individual children you may know. |
| Format: | Adobe Acrobat |
| Size: | 126.303 kb |
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| The Reflux Recorder |
| Source: | BabyGERD.com |
| Description: | A checklist of symptoms that are typical in children with gastroesophageal reflux disease (GERD).
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| URL: | http://www.babygerd.com |
| Format: | Adobe Acrobat |
| Size: | 378.287 kb |
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| Wake County LICC (Local Interagency Coordinating Council) |
| Source: | Wake County LICC |
| Description: | The Wake County LICC is a collaborative partnership among parents, caregivers, public agencies (such as the CDSA, Wake County Human Services and Wake County Public Schools), private and non-profit organizations, and interested community members to promote a coordinated and effective Early Intervention System in Wake County.
The LICC wants and needs input from families. Please call 919-856-5847 or email wake.licc@gmail.com for more information. |
| Format: | Adobe Acrobat |
| Size: | 516.896 kb |
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| Your Smile |
| Source: | HMS School |
| Description: | Your Smile: Dental Care for Children with Cerebral Palsy.
This video addresses dental care interventions that can help to maintain healthy mouths and bodies of children with cerebral palsy. Featuring advice from dentists and other health care providers. This video is being made available to you through the collaborative efforts of HMS School for Children with Cerebral Palsy located in Philadelphia, Pennsylvania and the Education and Training Division of Proctor and Gamble. |
| URL: | http://www.telability.org/videos/YourSmile.ram |
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